Just curious...If you didn't know our family, and you were to see us in public, would you feel awkward talking to us because our daughter has no hair? Would you feel like you couldn't acknowledge that for fear of hurting our feelings or upsetting us? Or what would your rationale be for not mentioning it?
I am asking this because when we are in public, Ava gets stares and we get questions ALL the time from little kids...I mean seriously, all the time.
Yet I think I can count on one hand the number of adult strangers who have even acknowledged the fact. (And most of those were on our trip to Missouri. Maybe Missourians are more outgoing than Oklahomans?)
Take the little boy in the striped shirt for example. When I asked him if Ava could ride on the merry-go-round with him, he said, "Sure! Does she have cancer?" I answered that no, she didn't have cancer, she has a condition called alopecia that keeps her head from being able to grow hair. He said, "Oh, that's
like cancer though, right?" :) I LOVE innocent questions like this.

I stood in Hobby Lobby today and had a 10 minute conversation with a woman who wanted to talk all about Ava and Down Syndrome, since she has a 50 yr. old sister with Down Syndrome. But, as I expected, because she was an adult, the question didn't come up about Ava's head. Many times I mention it anyway, just because I know people are wondering, but today I let her talk and talk, wondering if she would ever ask. And she didn't. :)
I admit, I have always been one to not ask personal questions such as this as well. After all that would be rude, right? But having this 'special' little girl in my life has made me see things differently. Now I prefer people wouldn't pretend to not notice, I would prefer people not just feel sorry or wonder, but to openly acknowledge her unique qualities. I don't mind answering questions and sharing her story. Every person in our family is very proud of Ava, and we think she is still just as beautiful without hair as she ever was with it.
I will say this....having a bald child has had some benefits. We have had our meals paid for in restaurants by random strangers on more than one occasion. We get occasional discounts and moved up to the head of the line. On occasions like that maybe it's best people not ask. ;)
I have been experimenting with some changes in her diet, just because it would make sense that her diet must have changed dramatically after joining our family, and maybe that is the reason for such dramatic hair loss. I reasoned that sugar and gluten were probably not something she had much of for the first four years of her life. Remember she drank broth, vegetables and rice pureed in her bottle.
For the last two months I cut all sugar out of her diet. When that didn't make a bit of difference we gave in on the sugar and last week we started her on a gluten free diet. There is absolutely no guarantee it will make a difference at all, but I feel like I owe it to her to do whatever I can.
For your enjoyment, here is my beautiful bald girl without eyebrows....

And just for fun, a picture of the beautiful
eyebrows uni-brow that I miss so much.
