You guys don't know how much your comments mean to me! You gave me encouragement, and you also gave me ideas!
I spent a while on the phone today talking to a nurse through our health insurance company, learning about benefits I didn't even know we had. She even offered to make some calls for me and get the ball rolling on a referral for a dietician and a GI specialist. I am not the most assertive and persistent person in the world and so this was a welcome gesture. Our family has always been so healthy, even the children with Down Syndrome...I haven't really known where to begin searching for the services we need for Zoya. Nurse Debbie, who works for United Healthcare, is super friendly, extremely knowledgeable, and returns phone calls promptly. I think I might have accidentally told her I loved her today. :) By the end of the day, Debbie had found a dietician in network, spoke to her personally, and called to get my permission to pursue the referral with our pediatrician tomorrow. I think we are finally getting somewhere.
Meanwhile, after my long post last night, I went in to find vomit all over Zoya's bed this morning. I think she puked the entire thing up. Is it sad that as I'm cleaning it up, I'm calculating how many dollars, as well as calories, were wasted? We have decreased her feedings a little bit for now until we can see a dietician/GI to determine what is the problem.
Having 90% of my time, resources, and energy going to one child has obviously had an impact on the rest of the family. Mainly my homeschoolers. After all these calls must happen during business hours, which are also school hours. I wonder how many days these last few weeks our assignments/lessons have been things like Basic Laundry Techniques 101, Nutrition 101 (i.e. how to cram the most calories into the smallest space), 7th grade Math Problems: "If a child needs to consume 237ml/ can, times four cans, over a 12 hour period, how many ml will she need to consume per hour?".....Etc.
I am confident there are good changes coming for Zoya. I can't wait to write a good report about her soon!